Lung Cancer Online
Karen Parles, MLS, Editor Lung Cancer News Support Research

In Memory of Karen Parles
After an eleven year struggle with non-small cell lung cancer, Karen Parles died of complications of her illness in the early morning hours of February 16, 2009.  She dedicated her life and her energies to the well being of her family and friends, and to improving the quality of care and information provided to people living with lung cancer.  Upon Karen’s diagnosis in 1998, lung cancer was a stigmatized disease, and her children were eight and seven years old.  Patients were treated largely as orphans by the establishments that allocated resources to care, research and outreach.  Celebrities only died of cancer, never of lung cancer.  Karen harnessed her outrage over this state of affairs to drag forward the leading edge of change.  She started this website, joined support and advocacy groups, served on national and local committees with leading lung cancer specialists, coauthored 100 Questions and Answers About Lung Cancer, and directly answered the questions of thousands of patients across the globe regarding issues related to living with lung cancer.  For her efforts she was awarded a Bicentennial Medal by Williams College, her alma mater, and the Catherine Logan Award for Service to Survivorship by the National Coalition for Cancer Survivorship.  Her greatest reward, however, was living long enough with lung cancer to see her efforts bear fruit.  Lung cancer patients now receive greater respect as well as more and better information about their illness, lung cancer research is more appropriately funded, celebrity deaths are now attributed to “lung cancer”, and her children are now adults. tumblrblogsocial mediaCaringBridge site in memory of Karen has been created to enable friends and family to stay connected.


Finding the Best Medical Care
physicians & hospital locators • lung cancer programs • second opinions • your health care team • communication & self-advocacy • issues that impact care (medical records management, multidisciplinary care)

Services & Support
support organizations • support groups (Internet, phone & in-person) • smoking cessation resources • financial & insurance issues • home care & hospice • caregiver & family issues • survivors' stories

Lung Cancer Information
general information • types of lung cancer • non-small cell lung cancer (nsclc) • small cell lung cancer (sclc) • bronchioloalveolar carcinoma (bac) • diagnosis & staging • prognosis & survival

Treatment Options
surgery • chemotherapy • radiation • treatment by stage • treatment of metastases • treatment of elderly patients & patients with co-morbid conditions • clinical trials resources • anti-angiogenesis • biological therapies • gene therapy • molecular-targeted therapies • photodynamic therapy • treatment agents & regimens • complementary & alternative medicine • palliative care

Symptoms, Side Effects & Complications
allergic reactions • anemia • arthralgias • blood clots • bronchorrhea (increased sputum) •cardiotoxicity • constipation • depression • diarrhea • extravasation • eye (ocular) changes • fatigue • fever • hair loss • hand-foot syndrome • hemoptysis (bloody sputum) • hypertension • lung collapse • mucositis • nausea & vomiting • neoplastic & paraneoplastic syndromes • neutropenia • nutritional problems • oral complications • pain • peripheral neuropathy • pleural & pericardial effusions • sexuality & reproductive effects • shortness of breath • skin problems • spinal cord compression • vocal cord paralysis

Tests & Procedures
biopsy • bronchoscopy • chemosensitivity tests • lab/blood tests • mediastinoscopy • nuclear tests (including PET/CT) • ports & catheters • pulmonary function tests • radiology tests • thoracentesis • airway stents

Surviving Lung Cancer
follow-up care • rehabilitation programs & exercise • emotional concerns • long term & late effects • practical matters (diet, employment issues, travel)

Websites & Organizations
Internet cancer guides • cancer websites & organizations • pharmaceutical companies

Researching the Medical Literature
medical literature databases • treatment guidelines resources • medical libraries • conference proceedings • professional journals • medical reference • lung cancer bibliographies


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Copyright © 1999-2007, Lung Cancer Online Foundation
Last modified: 18-Feb-2009
Karen Parles, MLS Editor

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