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About Lungcanceronline.org
About the Editor - Karen Parles, MLS
Lungcanceonline.org Linking Policy

About Lungcanceronline.org

Lungcanceronline.org was created in March 1999 by Karen Parles, a lung cancer survivor and librarian, as a comprehensive, annotated directory to reliable Internet resources for patients and families. The aim of Lungcanceronline.org is to facilitate the time consuming and often frustrating process of learning about lung cancer, treatment options and support services. Lungcanceronline.org is cited as a leading website for lung cancer in medical journals, cancer support publications and the media. (See "Awards & Recognitions" for further information.) We welcome suggestions for how to improve Lungcanceronline.org.



About the Editor - Karen Parles, MLS

Karen is a librarian, wife and mother who was diagnosed with lung cancer in 1998 at the age of 38. Following recovery from her treatment, Karen created Lungcanceronline.org and served extensively as a lung cancer advocate for the National Cancer Institute and other cancer advocacy and support organizations. In February 2002, Karen founded The Lung Cancer Online Foundation.

Karen's experience with lung cancer began with an incidental finding on an x-ray. She had no symptoms or risk factors for lung cancer. After an exploratory thoracotomy in January 1998, she was diagnosed with advanced NSCLC. Her cancer presented as a small lung nodule with pleural involvement, no distant metastases and negative nodes via mediastinoscopy. After chemotherapy and surgery to remove her right lung, Karen enjoyed a remission of 4 1/2 years. Her cancer recurred in August 2002 and has been successfully treated with chemotherapy, radiofrequency ablation (RFA) therapy and radiation. If you would like to know more about Karen's treatment, click here.

Karen has worked previously for Smithsonian Press, Time-Life Books, Houghton-Mifflin, The Metropolitan Museum of Art and The Frick Collection. She received her library degree from Long Island University and following her lung cancer diagnosis focused her professional activities on medical librarianship. Karen attends ongoing CE courses, including evidence-based medicine for librarians, and is a member of the Medical Library Association. A 1981 graduate of Williams College, Karen was honored by her alma mater in 2001 with a Bicentennial medal for her work in support of people with lung cancer. In 2004, the National Coalition of Cancer Survivorship (NCCS) presented Karen with the Catherine Logan Award for Service to Survivorship. Along with Dr. Joan Schiller, she is the author of 100 Questions & Answers About Lung Cancer, published in 2003 by Jones & Bartlett Publishers.



Lungcanceronline.org Linking Policy

The following criteria serve as guidelines for inclusion of any resource on Lungcanceronline.org:

relevancy of content to lung cancer patients and families

quality of content (is it accurate? who is the author? are the sources cited?)

timeliness (is the content current? is site updated regularly?)

for websites: source of funding; privacy policy; contact/feedback mechanism

duplication (does the resource duplicate existing content?)

If you would like to suggest a website or resource for possible inclusion in Lungcanceronline.org, please send an e-mail with your name and the url you wish to be considered.

***Please note that Lungcanceronline.org does NOT link to commercial sites selling products, especially those that purport to cure lung cancer. Charities or benefit sites are also not included unless they qualify as a substantive patient information resource as indicated above. Unfortunately, mesothelioma sites are beyond the scope of Lungcanceronline.org at this time.***

 

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Copyright © 1999-2007, Lung Cancer Online Foundation
Last modified: 18-Feb-2009
Karen Parles, Editor